Hi All,
Welcome to a more frustrating version of the Barnes Family Update. I am in the 7 week since my last lupus flare started. While I would like to share good news, the fact remains that the flare has not subsided. Things got so bad 3 weeks ago that my aunt had to fly here from NF to look after Tucker for me. I have spent most of the past 7 weeks in bed unable to move because of the severe joint pain and debilitating fatigue. Thank God for family is all I know how to say these days because I do not know what I would have done without my aunt. I feel like I have been starting to get some shred of my life back in the past week only do develop a sinus infection. Apparently, the lupus has lowered my immune system so badly that I am susceptible to just about everything.
My Rhumatologist sent me for a bone scan 2 weeks ago in hopes to find out more about what is going on. While I am very anxious to find out what the results are, my gut tells me she is not going to have a lot of answers. The only thing we know for sure is that some of the problems I has with my hands, neck and ankles in high school and all of my bowel problems are linked to the lupus. In fact, apparently I should have been diagnosed about 10 years ago. I know it is wrong to be vindictive, but it is very hard for me to let go of the feeling of wanting to go up to all those teachers, Doctors and so called friends and family and speak my mind to them for doubting my health issues and there severity for years!!!!! (Lord, please rid me of these angry and hurtful feelings.)
We have been trying to figure out if and where lupus runs in my family. So, mother family members have been going through testing. It seems that while no one else has come back positive, there have been those who have come back borderline; they could swing either way. We hope it never develops into anything, but you never know. Rheumatoid and Osteo arthritis is apparently all over my family so, maybe that explains something!
On some positive notes, Tucker seems to be finally over his cold and ear infection. He also has cut 5 teeth all on the top almost overnight. It is so strange to see him smile with this big mouthful of pearly whites. I just have to wonder when the bottom teeth are gonna come in?
Darryl is doing very well these days with his new fitness routine. He has lost about 40lbs and is really starting to show muscle definition. He was always the hottest guy to me but now. . . HUBBA HUBBA! I am so proud of him and his determination to get himself in shape. Darryl is in the process of considering a job change. The fitness is just one step in this process. Please pray for him during the next few months and some changes may take place. When the time is right we will share more.
On an even more positive note, I was talking to my mother-in-law tonight. Her and dad went away to a couples retreat this past weekend and she received he baptism for the first time! She, along with the rest of us, are so excited for her. Unfortunately, life has thrown her some hard knocks in the past few years with her diagnosis of Parkinson's Disease. But she is a strong woman and she serves a big God!
It is time once again to sign off for now! I hope to have much more positive news in the next blog. Thanks once again for all of you who send emails and call. It is because of caring people like you who never forget us and keep us in your prayers that carries us through.
Until Then,
Crystal (Darryl,Tucker & Misty)
Welcome to a more frustrating version of the Barnes Family Update. I am in the 7 week since my last lupus flare started. While I would like to share good news, the fact remains that the flare has not subsided. Things got so bad 3 weeks ago that my aunt had to fly here from NF to look after Tucker for me. I have spent most of the past 7 weeks in bed unable to move because of the severe joint pain and debilitating fatigue. Thank God for family is all I know how to say these days because I do not know what I would have done without my aunt. I feel like I have been starting to get some shred of my life back in the past week only do develop a sinus infection. Apparently, the lupus has lowered my immune system so badly that I am susceptible to just about everything.
My Rhumatologist sent me for a bone scan 2 weeks ago in hopes to find out more about what is going on. While I am very anxious to find out what the results are, my gut tells me she is not going to have a lot of answers. The only thing we know for sure is that some of the problems I has with my hands, neck and ankles in high school and all of my bowel problems are linked to the lupus. In fact, apparently I should have been diagnosed about 10 years ago. I know it is wrong to be vindictive, but it is very hard for me to let go of the feeling of wanting to go up to all those teachers, Doctors and so called friends and family and speak my mind to them for doubting my health issues and there severity for years!!!!! (Lord, please rid me of these angry and hurtful feelings.)
We have been trying to figure out if and where lupus runs in my family. So, mother family members have been going through testing. It seems that while no one else has come back positive, there have been those who have come back borderline; they could swing either way. We hope it never develops into anything, but you never know. Rheumatoid and Osteo arthritis is apparently all over my family so, maybe that explains something!
On some positive notes, Tucker seems to be finally over his cold and ear infection. He also has cut 5 teeth all on the top almost overnight. It is so strange to see him smile with this big mouthful of pearly whites. I just have to wonder when the bottom teeth are gonna come in?
Darryl is doing very well these days with his new fitness routine. He has lost about 40lbs and is really starting to show muscle definition. He was always the hottest guy to me but now. . . HUBBA HUBBA! I am so proud of him and his determination to get himself in shape. Darryl is in the process of considering a job change. The fitness is just one step in this process. Please pray for him during the next few months and some changes may take place. When the time is right we will share more.
On an even more positive note, I was talking to my mother-in-law tonight. Her and dad went away to a couples retreat this past weekend and she received he baptism for the first time! She, along with the rest of us, are so excited for her. Unfortunately, life has thrown her some hard knocks in the past few years with her diagnosis of Parkinson's Disease. But she is a strong woman and she serves a big God!
It is time once again to sign off for now! I hope to have much more positive news in the next blog. Thanks once again for all of you who send emails and call. It is because of caring people like you who never forget us and keep us in your prayers that carries us through.
Until Then,
Crystal (Darryl,Tucker & Misty)
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